Marc Jones and his wife Zoe say the organisation’s respite care for their three-year-old son, Tighe, has been fantastic and has kept their family together.
Tighe was born with a complex genetic condition which led to him developing Tracheomalacia, a condition that occurs when the cartilage in the windpipe has not developed properly.
Instead of being rigid, the walls of the trachea are floppy and cause breathing difficulties. Tighe was unable to swallow and medical staff at a Birmingham Hospital had to feed him intravenously during months of critical care.
Since leaving hospital Tighe has needed two carers with him at all times and requires regular consultation with medical staff to monitor his condition.
Zoe, 30, explained the vital role played by Hope House in caring for Tighe and easing the burden of care on her family.
She said: “Tighe attends Hope House for around 20 days every year as part of the organisation’s respite care service for parents and it’s been a real lifeline for us.
“The levels of care at Hope House are second to none and the staff are just unbelievable.
"The respite service is fantastic as it allows families like us the occasional break as carers, and gives us the reassurance that Tighe is receiving the best care.
“Tighe’s a very happy little boy and he loves coming here. The Hope House team genuinely cannot do enough for the children in their care – and we know that Tighe loves playing with the staff and the other children here.
“He’s always got a smile on his face and he’s so confident and happy that he makes friends with other children really easily.
“We see the progress he’s making with every passing week, month and year and he’s getting better all the time. Developmentally, he’s just like any other little boy and loves cars, trains and playing at cowboys. We wouldn’t change him for the world.”
Tighe’s father, Marc, said the service has allowed the couple to spend invaluable time together and with their 10-year old daughter Ellie-May.
He said: “Without Hope House, Zoe and I may have struggled to stay together. The service they provide really offers a lifeline to parents who are struggling to cope and we feel really lucky to have their help.
“The children here are cared for so well, they think of absolutely everything. The staff spoil them rotten and they’re often given treats and are invited to lots of fun events like trips to Alton Towers, Chester Zoo and Cosford Air Show.
“As parents we’ve also met many other families who use the respite care service and have made many friends during our visits here.”
Proud mum Zoe said that Tighe is looking forward to starting at a mainstream nursery near their Telford home soon.
She concluded: “By supporting this campaign you are raising funds for a wonderful charity. The people at Hope House are inspirational and provide us with a real life-line.”
Hope House provide specialist nursing care and support to life-limited children, young people and young adults from Shropshire, Cheshire, North and Mid Wales.
Care like the Jones fa
mily receive is only possible because of fundraising like the Business Challenge.
Hope House is completely dependent on donations to fund its vital services for 11 months of every year.
To donate to Hope House through the Oswestry and Border Counties Advertizer - who will be supporting this wonerful charity throughout 2015 visit www.bordercountiesadvertizer.co.uk/news/charity.aspx
Or send a text message to BCAC84 followed by £1, £3, £5 or £10 to 70070